Conference: Programme
Note: This is a preliminary programme and is subject to change.
Friday, August 7
Meet & Greet Dinner
4:30 pm – 7:00 pm
Kick off the conference with an evening of connection, conversation, and community. Our Meet & Greet Dinner is a chance for families, patients, doctors, and researchers from around the world to finally meet in person, reconnect with old friends, and welcome new members into the Brighter Hope Foundation community. It is a relaxed and joyful start to a weekend filled with learning, support, and hope.
Worldwide Walk
7:00 pm – 7:45 pm
During the conference weekend we will celebrate the 7th Annual Brighter Hope Foundation Worldwide Walk. Each year, families around the world walk in their communities to raise awareness and support research for GACI and ARHR2. All funds raised this year will support the Financial Assistance Fund, helping families attend the conference. The walk has become a meaningful global tradition that brings our community together. Conference attendees will have the opportunity to participate all together as part of this worldwide event. More information on the Worldwide Walk can be found here.
Saturday, August 8
Conference & Childcare Registration
9:00 am – 9:30 am
Check in, pick up your conference materials, and settle in for the day ahead. Families can also bring their children to the childcare area so that they can attend the presentations without distraction. Childcare will be located nearby so it is easy to check on the kids throughout the day! Children will join their families for the lunch break.
Presentations
9:40 am – 4:00 pm
Our full day of presentations brings together leading doctors, researchers, and experts to share the latest information about GACI and ARHR2. Throughout the day, families will learn about the spectrum of the disease, new research, and treatments – while also having the opportunity to ask questions, share experiences, and connect with others who truly understand this journey.
Sunday – Monday, August 9-10
Patient & Family Visit to Disneyland Paris Theme Parks
After a full day of learning, it is time for fun and celebration together. Families will spend two magical days at Disneyland Paris, enjoying rides, shows, and special moments with others in the Brighter Hope Foundation community. These days are all about laughter, friendship, and creating joyful memories together – because sometimes the most powerful support comes from simply having fun side by side.
Questions? Contact us at info@brighterhopefoundation.org.



