Events
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Brighter Hope Foundation Events
2026 Brighter Hope Foundation Worldwide Walk Fundraiser
On August 7th, 2026, patients, families and supporters worldwide are walking 3km to raise hope for those affected by GACI and ARHR2. This walk connects us, spreads awareness, and raises funds. Every step and every donation makes a difference. Please help us by fundraising or making a donation.
Patient & Family Conference – August 7-10, 2026
The conference will be held in Paris, France, and we warmly welcome patients and families affected by ENPP1 deficiency or ABCC6 deficiency, as well as medical professionals and researchers from around the world, to attend.
Click here for more details.
Medical & Research Meetings
Global Genes Rare Drug Disease Symposium
September 9-11, 2026
Boston, United States
Register
ASBMR – The American Society For Bone & Mineral Research
October 9-12, 2026
Boston, United States
World Orphan Drug Congress Europe
October 26-28, 2026
Amsterdam, the Netherlands
Register
Global Genes RARE Patient Advocacy Summit
The RARE Patient Advocacy Summit is a wonderful opportunity to make connections with other people affected by rare diseases. It is a three-day program of workshops, dinners, and presentations on cutting-edge research and therapies. It is the largest gathering of rare disease patients, caregivers, thought leaders, and other rare disease stakeholders worldwide.
Dates: September 25 – 28, 2024.
Location: Kansas City, US.
Past Events
Brighter Hope Foundation Worldwide Walk 2024
The fifth annual Worldwide Walk took place on August 11, 2024. The walk was held during the weekend of the Brighter Hope Foundation Patient & Family Conference in Baltimore, Maryland. It was the first time that the community, which is spread all over the world, has ever had the chance to walk together in the same place at the same time. We are still accepting donations. DONATE NOW
Brighter Hope Foundation Patient & Family Conference – August 9-11, 2024
The conference will take place in Baltimore, US, on August 9-11, 2024. The event will feature scientific presentations from experts in GACI and ARHR2, research and clinical trial updates, and opportunities for connection and community building.
Brighter Hope Foundation Worldwide Walk 2022
The third annual Worldwide Walk took place on September 25th, 2022. Thank you to all of our team captains, fundraisers, donors, walkers, and sponsors.
Personalized Santa Letters – 2021
This fundraiser is now over.
Brighter Hope Foundation Worldwide Walk 2021
The second annual Worldwide Walk took place on September 25th, 2021. Thank you to everyone who created a team, joined a team, fundraised, or donated to help fundraise and raise awareness of GACI/ARHR2.
2021 Brighter Hope Foundation Family Fun Weekend
The family fun weekend was held on July 16th-18th, 2021. Due to the COVID-19 pandemic, the Family Fun Weekend was a virtual event. Click here to see the program of events. We hope to be able to offer an in-person family event at some point in the future when it is once again safe to gather together.
2021 Brighter Hope Foundation Family Conference
Unfortunately, we have had to make the difficult decision to switch to a virtual event. The health and safety of the members of our GACI/ARHR2 community is our number one priority. With the ongoing pandemic, we feel that a virtual event is the safest option for everyone at this time. We hope to be able to offer an in-person family event at some point in the near future when it is once again safe to gather together.
In lieu of our planned conference, in July 2021 we will be holding the
Brighter Hope Foundation Virtual Family Fun Weekend. We will offer something for everyone – parent/patient discussion groups, Q&A with experts, scientific updates, and fun activities for the whole family!
Rare Disease Day – Feb. 28th, 2021.
GACI/ARHR2 Awareness Day – Feb. 1st, 2021.
Brighter Hope Foundation Worldwide Walk – Sept. 12th, 2020.
The Brighter Hope Foundation Worldwide Walk was held on September 12th, 2020. For the first time ever, members from the GACI/ARHR2 community were unified on one day around one shared cause when they participated in the Brighter Hope Foundation Worldwide Walk. Thank you to everyone who walked with us to raise awareness and to raise money to further the mission of Brighter Hope Foundation – to connect families to each other and the medical community, to provide current educational resources, and most importantly to support ongoing research for better treatment options. We can’t wait to do it again next year!
Brighter Hope Foundation Worldwide Walk
September 12th, 2020. Click here for more information.
GACI/ARHR2 Awareness Day – February 1st, 2020.
Around the world, Rare Disease Day is acknowledged on the last day of February, a month known for having a ‘rare’ number of days.
We are kicking off the ‘rare’ month of February with the second annual GACI/ARHR2 Awareness Day on February 1, 2020. Please join us in spreading awareness of the ultra-rare conditions of Generalized Arterial Calcification of Infancy (GACI) and Autosomal Recessive Hypophosphatemic Rickets Type 2 (ARHR2). Click here to find out more information about GACI/ARHR2 Awareness Day and how you can help to spread awareness of GACI/ARHR2 on Feb 1st.
Brighter Hope Foundation #GivingTuesday Campaign 2019
Our Giving Tuesday Fundraiser has now ended and thank you to everyone who donated. If you’d still like to donate, you can donate here on our website. All donations, whether big or small, are gratefully appreciated. Thank you for supporting Brighter Hope Foundation. Your contributions allow us to further our mission of connection, education, research and hope.
Brighter Hope Foundation Family Meeting 2019
Please let us know if you can join us at our Brighter Hope Foundation Family Meeting. The meeting is being held in the Sheraton San Diego Hotel & Marina on September 18th, 2019. Time to be confirmed. Inozyme, the pharmaceutical company working on developing a new treatment for GACI, will also be hosting a meeting for our group on the same day. Please complete the sign-up form if you hope to attend.
Brighter Hope Foundation Travel Scholarship
Click here for scholarship details
Brighter Hope Foundation 2019 Hope Award
The recipient of the 2019 Hope Award was Donna Hicks! Donna has given freely and willingly of her time to support Brighter Hope Foundation in our endeavors. More importantly, she has long been a source of support and encouragement for many in the GACI / ARHR2 Community. She is always willing to answer questions, offer a listening ear, or provide encouragement to those that are still in the trenches of a GACI diagnosis. Congratulations to Donna! ❤️
Brighter Hope Foundation Family Meeting 2019
