Blog

Who Should Be on Your Rare Disease Care Team?

September 18, 2026

Living with a rare disease often means working with more than one healthcare provider. For individuals and families affected by Generalized Arterial Calcification of Infancy (GACI), ARHR2, ENPP1 Deficiency, ABCC6 Deficiency, and related conditions, care...

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Back to School with GACI, ARHR2 and Related Rare Conditions

August 20, 2026

The start of a new school year brings new teachers, schedules, activities and routines. For families affected by Generalized Arterial Calcification of Infancy (GACI), Autosomal Recessive Hypophosphatemic Rickets Type 2 (ARHR2), ENPP1 Deficiency, ABCC6 Deficiency...

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Living with ABCC6 Deficiency

January 21, 2026

Living with ABCC6 Deficiency can involve a wide range of experiences, from serious medical challenges in infancy to slowly developing symptoms later in life. This rare genetic condition affects the body’s ability to regulate mineralization,...

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Living with ENPP1 Deficiency

December 29, 2025

Living with ENPP1 Deficiency presents a unique set of challenges that affect the body in complex and often life-altering ways. Because this rare genetic condition can lead to vascular calcification, bone abnormalities, and chronic pain,...

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